PHILADELPHIA - Philadelphia was glowing pink on Thursday night for a local little girl in honor of NF Awareness Month.
FOX 29's Executive Producer, Jessica Klein, had a baby girl named Mila who had NF and high blood pressure. Here is Mila's story.Mila Gray Roomberg was born on September 16, 2017.When she was just a few weeks old, her parents, Jess and Dan, started noticing birthmarks on her back.They took her to CHOP Dermatology and Genetics and Mila was later diagnosed with Neurofibromatosis type 1, which is also known as NF1.
Besides her birthmarks, Mila did not have any known symptoms. In fact, most of her life was normal.But when Mila was 14 months old, her high blood pressure was discovered.She was diagnosed with mid-aortic syndrome.