city Atlanta Georgia doctor Parke Extreme city Atlanta Georgia

Georgia toddler diagnosed with extremely rare uncombable hair syndrome

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ROSWELL, Ga. - Sixteen-month-old Lock Samples has grown up sticking out.Everywhere the Roswell, Georgia toddler goes, his mother Katelyn Samples says, he turns heads."We can't go anywhere without someone making a comment, whether it's the park or Publix," Samples says. "People come up to us, they ask to touch it.

They're very curious about his hair."Lock Samples was born with typical baby hair, just like his big brother Shepherd, who is 3 years old.But, when he was about 6 months old, Katelyn Samples says, Lock's locks started to take off."I was going to my mom and asking her, 'Did I have hair like this," she says, laughing.When they try to wash it Lock's hair, it was hard to get it wet."Then, as soon as we would dry it, it would not lay flat, even if we brushed it," she says.  "As soon as it dries, it pops back up."And the Roswell toddler doesn't seem to mind the attention he draws"Even at the doctor's office, it's almost like an episode of House; there's always a lot of doctors in the room, and he just eats it up," his mother says.

Still, for months, the Samples didn't know why Lock's hair was doing this."And, then a stranger messaged me on Instagram," Katelyn Samples says.That stranger told her Lock might have a kind of one-in-a-million heredity condition, known as "uncombable hair syndrome.""I got nervous because I'd never heard of it before," Samples says.She Googled it, then called his pediatrician."And, they were like, 'We know Lock, and we know his hair, but we can't really help you here, so we're going to send you to directly to a specialist,'" Samples remembers.That is how they ended up at Emory University Hospital in Atlanta.(Courtesy of Katelyn Samples) "We went into the dermatologist's office and several.

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