Edith Lemay, Sebastien Pelletier and their four children. (Credit: Edith Lemay) BALI, Indonesia - For Edith Lemay and her husband, Sebastien Pelletier, it’s a race against time to see as much of the world before their kids completely lose their vision.
The couple has four children: 11-year-old Mia, 9-year-old Leo, 7-year-old Colin and 5-year-old Laurent. All of them, except for Leo, were diagnosed with retinitis pigmentosa, a rare eye disease that leads to vision loss and blindness.
Lemay said she got the idea to travel after Mia was diagnosed with the disease four years ago. They took her to a specialist after she kept bumping into items.
Lemay told the specialist she wanted her daughter to start learning braille, but the specialist advised against it, saying her daughter’s vision was still good at that point.RELATED: Quick-thinking nurse hailed as hero for saving baby who stopped breathing on flightHer two youngest children also developed the same vision symptoms and were diagnosed with the same disease.